Adoption of PatientsLikeMe points to the importance of online spaces in which patients can share experiences and receive peer-support consistent with their treatment plans. We are investigating the ways PLM captures, stores, and presents health information inside of a social network context.
// moreThe mass adoption of social network sites includes, as a natural consequence, the growing presence of profiles representing individuals who are no longer alive. However, the death of a user does not result in the elimination of his or her account nor the profile’s place inside a network of digital peers. Indeed, the fact that friends use a user’s profile page, post mortem, to say last goodbyes, share memories, and coordinate funereal arrangements is well known, if not frequently discussed.
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